COVID-19 long haulers are people who have been diagnosed with COVID, survived, but are still struggling with severe symptoms months, in some cases, nearly a year later.
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"I had a headache so severe, it felt like my temple had a knife going into it," said Bruce Wheeler, who was diagnosed with COVID in March of last year.
The study published in the journal Nature involved at least 73,000 non-hospitalized coronavirus patients from the Veterans Affairs Health System. Research shows between one to six months after infection, patients experienced respiratory issues, cardiovascular problems, gastrointestinal pain, and mental health issues, including memory loss.
"So they were finding really the whole gamut," said Dr. Brian Block, who leads UCSF's Optimal Clinic that treats recovering COVID patients. "The question is how common are these outcomes?"
According to the study, around 1 to 6 months after infection, non-hospitalized COVID-19 survivors were around 50 percent more likely to die compared to those who didn't have COVID-19.
"This change in mortality is very significant on the population level," said Dr. Block. "If you consider 30 million people in the U.S. having had coronavirus this could translate to several hundreds of thousands of additional deaths in the six months after initial infection."
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A majority of the non-hospitalized COVID patients analyzed in the study were white men. More than 1,600 died or around 2.3 percent of the total number of patients. But, as Dr. Block pointed out the specific cause of death in these cases is still unknown.
"Trying to understand what it is that leads to these worse outcomes, that piece of the puzzle isn't very clear," Block said.
Wheeler is one of Dr. Block's patients, but thankfully was not exhibiting any life-threatening symptoms.
"It was comforting to know that I wasn't alone," said Wheeler. "This was all real."
UCSF has implemented a Zoom support group for COVID patients with long-term symptoms. For more information, click here.
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